Monday, June 26, 2017

Having To Dial It Back --- UGH

I'm a little frustrated today. I'm realizing I can't draw every day. (Imagine extreme sad face 😞) Due to the damage to my muscles and tendons I am finding I need to give the muscles in my arms at least a day off -- maybe more. 

Drawing relaxes me. When I can't do something or go someplace I can draw. It gives me joy and I find pleasure in just putting pencil to paper. But, I am finding after drawing for just a little while, my shoulder, bicep and elbow is not just fatigued but screaming at me to stop. 

Soooo I need to take at least a day to let my body recover from the task of sketching.  lol Sounds pretty extreme I know, I mean how taxing is drawing? Right? Apparently right now for me it's too taxing. 

So beginning this week I am putting myself on a strict schedule. I'll sketch one day and rest the next. We'll see if there is any improvement in my pain levels.  

So I've dusted off the couch, added plenty of pillows, and stocked up of Iced Tea. It looks like I will be catching up on my reading and netflix.

On another note here is another sneak peek.


Available on Etsy. http://etsy.me/2sohqfm

Wednesday, June 21, 2017

Tuesday, June 20, 2017

Final Editing

Working today on yet another book in my "Coloring Therapy Series".

Today I am working on the computer doing the final editing and formatting and then it is done. 😎

























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Wednesday, May 24, 2017

What no one tells you about the struggles of Chronic Illness

John and I were sitting on the patio talking last night and he asked me "what I want to accomplish this summer?" I thought about it a minute and said I think I need to work on contentment.

The dictionary definition is:
con*tent*ment
The state of being contented; ease of mind. A mental or emotional state of satisfaction maybe drawn from being at ease in one's situation, body and mind. Colloquially speaking, contentment could be a state of having accepted one's situation and is a milder and more tentative form of happiness.

As I've mentioned in a previous blog post I've recently come across information concerning my medical issues. This has rocked my world and changed the playing field. I'll go into more detail explaining it all on another blog post. It overwhelms me to get it down on paper.  I’ve tried but I need to get my thoughts clear enough to explain it. I’ve waded through mountains of research but have trouble explaining what I've learned.


Back to contentment. I'm striving to be content in where I am. I'll be honest with you it's been a rough couple months. I've been dealing with anger, frustration, grief and depression. Because there is no CURE or TREATMENT for Fluoroquinole Toxicity Syndrome (FTS) I am struggling my way through accepting that this is the best I will be from now on, there’s a very real possibility of complications and getting even worse. I now know that I will never be able to do the physical things that I used to do with ease, because of the damage done to me is permanent. I have to come to terms with these things – these limitations. That’s the crux of the problem right there.  That's where my brain shutters to a halt and screams at me "wait, what? wait, no that can't be right." “These limitations.” Just those two little words sends chills up my spine.  I need to turn my thinking around to one of acceptance. Acceptance of my current condition - which I cannot change - and I need to have a realistic understanding of my future prospects. I need to be at peace with what I cannot, but, more importantly what I CAN do. Sounds so easy doesn’t it? The voice in my head is snapping "well it's NOT!" lots of foot stomping and failing of arms going on also. 

I find I am grieving for the lifestyle I used to have ... free of chronic pain. Having clear thinking and feeling strong and able to work, being able to leave the house, to go places, to visit with friends and family. To be able to think clearly enough to have a conversation and to be able to track with conversations going on around me. To be able to cook, clean my house or even dress myself without help. Be able to go to the store, a concert, movie or even to drive - these are all things I've had to give up as a result of FTS.

I've been on a roller coaster of anger, frustration, wrestling with how it's not fair and lots of depression, and bouncing back-and-forth between all of them. (Poor John, he's been supporting me through it. He gets Husband of the year for sure.)

But, back to that contentment thing. I need to accept that this is where I am, and this is how it will be - short of the Lord healing me - from now on.

We decided we will spend the Summer tackling some projects around here to make the house safer.  Brainstorming ways to make it easier for me to do the things I need to do. Laundry, cooking, getting into and out of my bed safely.  Grab bars in the shower, widening the front sidewalk. 

Because my tendons and muscles were damaged it's difficult for me to reach above shoulder height. Since I'm short in stature lol, this presents a real problem. I'm finding it difficult reaching into the upper cabinets of the kitchen. If I have anything with any weight at all in my hands a plate, a mug even hanging a shirt on the closet pole is extremely painful. Not being able to reach anything above shoulder height I'm finding out is indeed very limiting. Do you realize how often you reach UP for something?  A step stool seems the obvious solution but I have trouble with balance so I'm not sure that's a safe choice. I'm open to any suggestions, some of these challenges really have us stumped. We recently downsized to a smaller home to make it easier for me.  (A very good move on our part with the info we now have on my medical condition) but we do not have the room to move everything out of the upper cabinets and use only the lower ones. 

So we will take the summer making the house safer and easier for me to live in, especially when John is not home.  We need to figure out some areas where I am having difficulty so I will be able to maneuver through a day on my own. For example, when I am having a bad brain fog day, how to turn on or off the heat and air. How to use the microwave, make a cup of coffee. All things I used to do without thinking about, things I took for granted.


That's all well and good, but back to the contentment, I need to find. I know for my own mental health I need to be content. I need to accept where I am. I need to accept my limitations, I need to have a positive attitude, and I need to get back to where I can see the good in things. I NEED TO LET GO OF THE ANGER, I need to let go of the frustration, and I need to find joy! I know it means that I won’t get back to where I "used to be." But I can still make progress! There are still amazing things I was meant to do. I know I was put here for a purpose and I can't get distracted with all the physical limitations. With the emotional trauma.  I need to dig deep and find perseverance and strength.

So this summer, there are lots of projects around the house to get done. But the hardest job, MY biggest job, will be contentment! Working through the grieving and being content.

Being able to honestly say Whatever my lot, Thou has taught me to say It is well, it is well with my soul. 


Oh, I forgot to tell you my second book in the series Coloring Therapy is available on Amazon!!! That just shows you how much I've been struggling. I'm so excited to have not one, but two books on Amazon and forgot to let any know? lol

Do you know of someone struggling to accept something they cannot change? I'd love to hear from you. 

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You can purchase my Coloring Notebook/Journal (Coloring Therapy) (Volume 1)

here:  http://amzn.to/2jeGh26

or my Easy Mandala: Notebook Journal (Coloring Therapy) (Volume 2)
here: http://amzn.to/2pOlq7Z


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Wednesday, May 10, 2017

5 Star rating on Amazon

Thank you!! Thank you so much for the lovely review Pete, on Volume 1. I've been getting quite a few people contact me telling me of their struggles with chronic illness and how they find coloring helps them.  How their therapist recommended they draw or color and how that relaxes them. I'm beginning to see how many people struggle with chronic illness on a daily basis.  

Book 2 in my Coloring Therapy Series is available on Amazon now. amzn.to/2pOlq7Z

Do you find coloring or drawing helps you relax? 


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Monday, April 10, 2017

Getting Close. I'm so excited!



Getting Close!! Watch for Easy Mandala's Notebook Journal in the "Coloring Therapy Series" Volume 2, Available next week on Amazon. I'm just waiting for Amazon to do their "approval thing"  This is so exciting.  

"I'm so excited, and I just can't hide it
I'm about to lose control and I think I like it
I'm so excited, and I just can't hide it" 

      The Pointer Sisters 1982

I have been working on an Easy Mandala COLORING BOOK which will be a companion book to the Easy Mandala Notebook Journal.  I am very close to submitting it. Just have the cover to finish, but Photoshop is an extreme challenge for me and my brain fog has been pretty "Fogged In" lately.  I am super excited about this one. It's 8 x 10 instead of the travel size I've been doing on the journal notebooks.  

There is just so much going on in the office here at the TheBlueScreenBlogger headquarters.  

I have another Journal I'm thinking about after the Coloring Therapy series. I thinking about a chronic illness journal. For years I have kept one in a blank lined book to track of whatever I trying to manage. Pain, diet, supplements, sleep, my weight, exercise, medications, a place to journal. I find it helps me keep track of all the facets of chronic illness. 

I recently went back and read through it.  I had forgotten so many of the struggles, frustration, and challenges I have been dealing with these last 10 years. I was able to see where I was and how I was coping - or not coping as the case may be. The weight I've lost, and the diets I've tried and tried and tried. So many fails -- It's been a long 10 years.  lol 

Still researching but I found I needed to slow down on that.  It was consuming me and I felt I needed to slow the roll and take a step back. John has been researching and sharing what he's learning with me and I find that's enough for me right now.  I'm trying to focus on positive things instead of all the medical depressing stuff right now. So I'm spending my time being creative and working on the "Coloring Therapy Series" instead. Honestly, I would rather think about coloring books than depressing medical stuff, would't you? 

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You can purchase my Coloring Notebook/Journal Volume 1 here:  http://amzn.to/2jeGh26



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Thursday, March 30, 2017

It may not be Fibromyalgia after all - I'm in Research Mode

I know it's been awhile since I've checked in. I recently came across something which seems to connect all the left over puzzle pieces together. Too many left over symptoms and Fibro never really seemed to make sense to me even though Fibromyalgia was diagnosed by my Rheumatologist.   After quite a bit of research, we are thinking this may be what I have been dealing with for the past several years. 


I am in research mode now -- when my brain is clear enough. (Which is really challenging me) LOL. Thankfully my family is helping me with this. It's pretty overwhelming. This is rocking my world. 

Will update when I know more. 

You can purchase my Coloring Notebook/Journal here:  http://amzn.to/2jeGh26


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We are a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees my advertising and linking to Amazom.com. The small percentage I may earn off your purchase costs you nothing extra.

Tuesday, March 7, 2017

Excited about my new Slate!

My new Slate Drawing tablet. TheBlueScreenBlogger.blogspot.com
Just a quick post showing you what arrived last week. Insert me doing a happy dance here. Can you picture it? Me dancing around trying not to stumble in my glee. Oh yeah, in my head I was getting it down – a real dancing machine.  

She's movin',
she's groovin'She's a dance, dance,
dance, dance,
dancin' machine, dancin' machine”
The Jackson 5, 1973.


I decided to buy the Slate drawing tablet by Iskn.  It came all the way from France.  (mair-see  boo-coo).  By airplane even.

There is a learning curve, but I’ve watched like eleventy-hundred YouTube videos so I should be good to go right?  Looking forward to figuring this puppy out.  I’ve kicked the tires, and taken it for a spin around the block but haven’t really dug in yet.



Kicking the tires. TheBlueScreenBlogger.blogspot.com

Have you tried a drawing tablet? What was your experience?


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We are a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees my advertising and linking to Amazom.com. The small percentage I may earn off your purchase costs you nothing extra.  

Thursday, February 23, 2017

Working on my next Journal/Notebook Easy Mandala's

Cover for Coloring Therapy Mandala Notebook
Working on the cover for my next Journal/Notebook in the series Coloring Therapy. Notebook 2 and 3 will be Mandala's. Book 2 will be easier Mandalas and book 3 will be harder Mandalas. The thinking is some days you just want to lay color on a page something not too challenging. Some days you are up to a challenge and want to concentrate and have the patience to do a detailed coloring. 


You can purchase my Coloring Notebook/Journal here:  http://amzn.to/2jeGh26



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We are a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees my advertising and linking to Amazom.com. The small percentage I may earn off your purchase costs you nothing extra.  

Wednesday, February 22, 2017

One Bite At A Time

Today was another one of those good day/bad day’s that I seem to have way to often.  It was a day with a long to do list. In my “before Fibromyalgia,” (I seem to mark time “Before Fibro and After Fibro”) this To Do list would have been the appetizer for the main event. But now my life is “after,” and I need to first assess how I am doing today before I even make a list. John and I start each day with questions like  How fatigued am I? What’s my pain level? What’s the brain fog forecast? After we get a read of how I’m doing I can make up my To Do list and then see how it goes. 

First on the list today was finishing the laundry that I had started yesterday and pooped out before I was able to get the wet wash into the dryer.  I also had a few more loads to get done. We’d see how much I’d be able to finish on the laundery detail.  Have you noticed we just never seem to be caught up?

Next up was a HUGE one.  Working on taxes for my Etsy stores.  We have a tax appointment in a couple of weeks and I need to finish this project pronto.  I started on this in early January, because I knew I needed lots of time to be able to get this done on time.  I knew in my “before” days I would be able to work on it for one or two afternoons and it would be finished.  Now I'm in my“after” I know I can only work for an hour or two, and then I need to quit for the day.  So I need plenty of time to spread it out.  The Beatles Taxman lyrics have been running through my head today. Lol 

Getting ready for the taxman, yeah, the taxman
If you drive a car, I'll tax the street,
If you try to sit, I'll tax your seat.
If you get too cold I'll tax the heat,
If you take a walk, I'll tax your feet.
Don't ask me what I want it for
If you don't want to pay some more
'Cause I'm the taxman, yeah, I'm the taxman”
The Beatles 1966 Revolver album

I was frustrated right from the start. I couldn’t focus – oh no - fog rolling in.  I sat down and thought I’d just pick up where I left off last time. I felt confident this would be easy peasy because I had my notes telling me where I had stopped last time.  They included detailed notes on where I had left off, and what I still needed to finish but the notes were not making any sense.  This is typical when fog is rolling in.

This logically should not have happened.  I was diffusing “Focus” blend - my heavy hitter.  When I know I’m going to be challenging my brain cells I diffuse and find it helps me think and wade though the fog. I had my hot drink of choice. I had cleared my desk of distractions. I had my list of what I hoped to accomplish in order of how they need to be checked off.

I was overwhelmed.  I got up and walked away. I went into the family room and chilled a bit. Came back into the office and I was able to figure out what I need to finish. My notes did make sense after all.  I worked all morning and was able to finish with the receipts after lunch. 

I knew my brain was done for the day so I thought I’d switch gears and work on something fun. The cover for my next coloring Mandala Notebook/Journal book.  The inside is complete, I just need the cover finished.  Last time I had worked on it I had gotten a lot done and I was looking forward to hopefully getting it finished.  Well that didn’t go so well. Nothing was working right on the computer. Everything just was not working even though I was following my notes EXACTLY.  I got out the “Photoshop for Dummies” book, I watched about one hundred and thirty YouTube videos, I called tech support (son-in-law Chris) nothing. Nothing was working today. Frustration level was going up, overwhelmed feelings going up so I closed down the computer and just admitted defeat again to this beast – Fibro.

John and I went for a short walk and he reminded me what I DID get done. Focus on that he said. Good advice! We listed all I was able to accomplish today. OK not as much as I would have liked, but still a good amount. I need to quit remembering what I used to be able to do! I am no longer able to multi task. (more on that in another post.) I can just do ONE job at a time.  But you know what? I can still do ONE job at a time!!!

After my walk I was sitting (recouping really) and thinking I need a better plan for days like this. The bookkeeping overwhelmed me right off. The fog rolled in. I was frustrated, overwhelmed, foggy and unable to focus.  So I asked myself "what can I do on a day like this to get the job done?" And then it came to me – uh huh moment. You know what I gonna say here don’t you… How do you eat an elephant? ….One BITE at a time. Is that angels singing? Yup I do believe it is, lol. And then I remembered I had gotten John a lovely carved elephant for Christmas a few years ago.  Yup I went and grabbed that baby and it’s gonna be my mascot.  It’s gonna be my visual reminder when I’m overwhelmed, when the job whatever it is (laundry? taking a shower?) seems to big for me to accomplish I just need to remember One BITE At a Time.

My new mascot 

Oh, and I did finish drying that load of wet clothes. However, it wasn’t until I was going to bed. I had thrown them into the dryer but forgot to turn it on. Huge sigh here. Yup I did exactly what my list said … Move clothes to dryer.  Next time I need my list to be a little more detailed and include TURN DRYER ON!  And so it goes in the life of a Fibro body. I'm Fighting Through The Fog.

Are your taxes one? Do they overwhelm you and if so what do you do to conquer it?



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Thursday, February 2, 2017

A Rough Fibo Weekend - Sensory Processing Disorder SPD

It was a very full weekend for me. I was able to watch my Grandson play soccer, and attended a family get together all in the same weekend.  That may not sound like a full weekend to most but to me it was WAY too much. I have been mostly housebound for a couple of years now due to my Fibromyalgia. I am occasionally able to go out but it is in a very controlled environment.

My Fibromyalgia also includes Audio Sensitivity and Sensory Processing Disorder SPD. Yes, I have a lot of issues don’t I? It seems even my issues have issues. Lol (More on Audio sensitivity in another post - it is the main reason I’m housebound.) For today’s post I will address the Sensory Processing.  I believe there are a lot of people who suffer from this and do not realize what it is.

Sensory processing issues happen because the brain has trouble receiving, responding to and organizing information from the senses.  In a nutshell, I become overwhelmed by too much stimulus. Loud noises are my worst symptom, challenging to put it mildly. I am hypersensitive to sounds, smells, light, flavors, textures, temperatures. They all agitate me to some degree. This affects my focus. I have trouble following conversation going on around me. At the soccer game I had trouble following the game. (I kept cheering when the other team scored Lol). Between conversing with those around me, the crowd noise, following what was going on with the game, it’s a good bet it will lead me to a complete overload of my senses. It causes problems with motor skills – I’m clumsy, I stumble or fall, slur my words, bump into things and am unable to tell where my limbs are in relation to space (getting fork to mouth). One of my first warning signals is I begin slurring my words. Next comes what I call “stumbly” I am become clumsy.  

We all receive a steady stream of sensory information throughout our day. Most people can “tune out” or “filter” that information. My brain struggles with that.  All that information coming in overwhelms me, causing what I refer to as “Blue Screen”.   Like when the TV is no longer receiving a signal and the screen turns blue. That is what happens to me when I am overloaded-overwhelmed.  My brain and my body say enough already and it switches off. I assume it’s to let my brain cool down.  Sometimes it’s for a short time, like when the power flickers. Other times it’s for a much longer period - like weeks.  When I’m like this I call this Blue Screen or Fogged In.   

I am hypersensitive to noise. I hear things most people “tune out” like the refrigerator running for example.  I sometimes have to leave the room because it overwhelms me and my pain shoots through the roof. Common sounds are painful (I’m often asked if it hurts my ears. The answer is no. It translates into overall body pain).  My husband, John, doesn’t even notice the sound, he’s “tuned it out”.

So back to my weekend… Saturday, was the soccer game. I find when my senses have been overwhelmed if I come home and immediately go to my room and lay down it helps my “jets cool”. Darkened, quiet room, in bed, for an hour at least will sometimes (I say sometimes because just as often this will not work) begins the restorative process.

Saturday, I came home and went right to bed. I knew it was going to be a bad evening, because the pain was climbing on the way home. I had trouble understanding what John was saying. I definitely was not coping. However, after my “quite time” I felt a little better. The pain has downgraded marginally and I was able to track with what John was saying.  I had Painsomnia, I was able to get about 5 hours of sleep – not bad for the afternoon activities.

Sunday, was the family get together and I broke my number 1 written in stone rule.  DO ONLY ONE ACTIVITY per week. I analyzed where I was Sunday morning and knew I should stay home because my pain was high and my coping was low.  But, I had been looking forward to this for a couple of months and decided to go but modify my attendance.  I went late and left early. I wore my noise cancelling ear buds. I took my cane because I was “stumbly” before I even left my house.

I knew I put myself in a flare.  I knew there was a good chance of this when I decided to attend on Sunday.  I counted the cost and decided it was worth it to attend the family event. 

Monday, I woke to a major flare. It was a mostly stay in bed day.  Pain was extremely high. Weather-brain forecast was dense fog. A “Socked In” kinda fog.  I went to put in a load of laundry and couldn’t figure out how to turn on the washing machine. I walked away and went back to bed. For dinner, I was helping John and couldn’t figure out how I was going to warm up the cornbread. (Note: it was already cooked I just needed to reheat it). I couldn’t decide what to put in on. A plate, a pan, or just stick it in the oven. I finally worked out that I could microwave it and placeed it on a plate. Then I couldn’t figure out how to turn on that tricky beast. All those key pads with numbers to press - Holy Kamoley - I was in a bad place.

So this is my life. I have learned to assess at all times. What’s the temperature? What’s the noise level? Will there be people I need to converse with?  Will I need to navigate through social interaction? Will I be able to remove myself from what’s overloading me or will I just need to try to cope my way through it? Will I be putting myself at risk walking or moving around?  Assess and reassess. You may be asking about now “was it worth it?” Yes, it was worth it! I got to leave the house 2 times this weekend. I got to spend time with the ones I love most in this world. I did “pay for it” but I knew I would before I went. The only question really was how much would it cost me. I had already planned on dialing back the beginning of the week to allow for recoup time. In looking back the equation is 2 afternoons out = 4 days recovery. As far as flares go it was really a mild one. I have found it is all a balancing act. I am grateful for the time I had with loved ones this weekend. Trying to count it all JOY.

Do you suffer from any of these symptoms? Leave me a comment. 

These are a few resources I have found helpful. They are are also in Resources located on the top bar. 
Starlanyl, Devin, and Mary Ellen Copeland,2001, Fibromyalgia & Chronic Myofascial Pain A Study Manual

You can purchase my Coloring Notebook/Journal here:  http://amzn.to/2jeGh26


www.TheBlueScreenBlogger.blogspot.com







We are a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees my advertising and linking to Amazom.com. The small percentage I may earn off your purchase costs you nothing extra.  




Free Printable Sample Page

I have had a few requests for some sample pages from my Coloring Therapy 1 Notebook/Journal. Good idea I thought, but a definite disconnect between the idea and the practical application. It has taken me a little bit to figure out how to go about it. Still not sure I'm doing it correctly. If this does not work if you leave me your email addy on the right bar I will be sure to email it to you.

Please enjoy this FREE sample page from my new coloring book on Amazon!! Coloring Therapy 1 a Notebook/Journal.

Please be sure to share when you finished coloring my page. I'd love to see it.

You can purchase my Coloring Notebook/Journal here: http://amzn.to/2jeGh26






We are a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees my advertising and linking to Amazom.com. The small percentage I may earn off your purchase costs you nothing extra.